RTÉ Ireland

Friedreich's ataxia campaigners calling on HSE to approve drug reimbursement

A demonstration is being held in Dublin city centre calling on the HSE to approve reimbursement for Skyclarys, a drug used to ...

‘Don’t want my parents to bury another child’ – Friedreich Ataxia campaigners in desperate drug plea at Dublin protest

PEOPLE suffering from Friedreich’s Ataxia gathered in Dublin to beg authorities to greenlight a new miracle drug as one woman ...

HSE agrees to fund drug for patients with Friedreich’s ataxia

The HSE has approved the reimbursement for a treatment for a rare genetic disorder, Friedreich’s ataxia, making it available ...