News

Training for an Ironman race is no easy feat, especially when living with cystic fibrosis. But I'm more determined than ever to push my limits, make my younger self proud, and prove to others that ...
Growing up, it wasn’t my cystic fibrosis that fueled my anxiety — it was the checklist of mental tasks I believed would prevent disaster. It wasn’t until adulthood that I learned this behavior is ...
This report offers key insights from last year’s CF Foundation Patient Registry data. The Registry includes data from people with CF in the United States who visit CF care centers and agree to ...
What Is Gene Therapy? The cystic fibrosis transmembrane conductance regulator (CFTR) gene contains the instructions for making the CFTR protein. When there is a mutation — or alteration — in the ...
The Impact of the CF Community This month is a celebration of you — the individuals, families, and supporters who make up the CF community. You can join us by sharing your accomplishments, milestones, ...
Passage of the bill — which cuts critical health coverage for people with cystic fibrosis and their families — shows the ...
Going to college while living with cystic fibrosis carries its unique challenges. One of these is learning to be vulnerable about CF with others. But as I learned to be open, I discovered that CF did ...
A recent hospitalization reminded me that my strength to fight cystic fibrosis is deeply rooted in my Filipino heritage and the unwavering support of my family.
After seeing the impact of my sister’s cystic fibrosis throughout my childhood, my late CF diagnosis, while difficult, has brought healing, strength, and a renewed sense of purpose to my life.
Use the list below to learn about lung transplant centers, including how many transplants each center has performed in the past six years — overall and for people with cystic fibrosis (Source: Organ ...
Cystic fibrosis is genetic disease that affects the lungs, pancreas, and other organs. It is progressive, meaning that it gets worse over time. There are close to 40,000 children and adults living ...